Organizations/Agencies

• Academy of Nutrition and Dietetics (AND)
• Agency for Healthcare Research and Quality (AHRQ)
• AHRQ Patient Safety Network (PSNet)
• American College of Nutrition (ACN)
• American Kidney Fund (AKF)
• American Nephrology Nurses' Association (ANNA)
• American Society for Artificial Internal Organs (ASAIO)
• American Society of Diagnostic & Interventional Nephrology (ASDIN)
• American Society of Nephrology (ASN)
• American Society for Parenteral and Enternal Nutrition (ASPEN)
• American Society of Pediatric Nephrology (ASPN)
• American Society of Transplantation (AST)
• American Society of Transplant Surgeons (ASTS)
• Arbor Research Collaborative for Health (formally the URREA)
• Association for the Advancement of Medical Instrumentation (AAMI)
• AV Fistula First Breakthrough Coalition (FFBI)
• Board of Nephrology Examiners, Inc. Nursing and Technology (BONENT)
• California Dialysis Council (CDC)
• Canadian Association of Nephrology Nurses and Technologists (CANNT)
• Canadian Institute for Health Information (CIHI)
• Center for Practical Bioethics
• Centers for Disease Control and Prevention (CDC)
  • Dialysis Safety
  • Division of Laboratory Systems (DLS)
  • Healthcare-associated Infections (HAI)
  • Morbidity and Mortality Weekly Report (MMWR)
  • National Center for Chronic Disease Prevention and Health Promotion (NCCDPHP)
  • National Institutes for Occupational Safety and Health (NIOSH)
  • Viral Hepatitis
• Centers for Medicare and Medicaid Services (CMS)
  • Consolidated Renal Operations in a Web-Enabled Network (CROWNWeb)
  • DialysisData.org
  • ESRD Clinical Performance Measures Project (CPM)
• Centre for Health Evidence (CHE)
• Chronic Disease Research Group (CDRG)
• Department of Health - UK (DH)
• The Dialysis Outcomes and Practice Patterns Study (DOPPS)
• ECRI - (Healthcare Technology Assessment)
• eHealth Initiative
• End-Stage Renal Disease (ESRD) Networks
  • ESRD Network Organizations Background from CMS
• Environmental Protection Agency (EPA)
• European Renal Association - European Dialysis and Transplant Association (ERA-EDTA)
• European Dialysis and Transplant Nurses Association/European Renal Care Association (EDTNA/ERCA)
• European Society for Paediatric Nephrology (ESPN)
• Food and Drug Administration (FDA)
  • Vaccines, Blood & Biologics
  • Center for Devices and Radiological Health
• Healthcare Information and Management Systems (HIMSS)
• Health Insurance Portability and Accountability Act (HIPPA)
  • Understanding HIPAA Privacy
• International Health Care Worker Safety Center (also EPINet™)
• International Society for Hemodialysis (ISHD)
• International Society for Nephrology Technicians and Technologists (ISNTT)
• International Society of Nephrology (ISN)
• International Society for Peritoneal Dialysis (ISPD)
• Joint Commission on Accreditation of Healthcare Organizations (JCAHO)
• Keeping Kidney Patients Safe
• The Kidney & Urology Foundation of America (KUFA)
• Kidney Disease: Improving Global Outcomes (KDIGO™)
• Kidney Disease Outcomes Quality Initiative (K/DOQI™)
• Kidney Disease Quality of Life Working Group (KDQOL)
• Kidney Foundation of Canada
• Lupus Foundation of America (LFA)
• Management Sciences for Health (MSH)
• Medicare
  • Medicare and Kidney Disease Education
  • Coverage of Kidney Dialysis and Kidney Transplant Services (Adobe Acrobat Reader required)
• Medicare Payment Advisory Commission (MedPAC)
• The National Anemia Action Council (NAAC)
• National Association for Nephrology Technicians/Technologists (NANT)
• National Center for Complementary and Alternative Medicine (NCCAM)
• National Foundation for Transplants
• National Guideline Clearinghouse  (evidence-based clinical practice guidelines)
• National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
• National Institutes of Health (NIH)
  • National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
• National Institutes for Occumpational Safety and Health (NIOSH)
• National Kidney Foundation (NKF)
• National Kidney Foundation (UK site)
• National Kidney Registry
• National Kidney Research Fund (UK site)
• National Patient Safety Agency (UK site)
• National Patient Safety Foundation
• National Quality Forum (NQF)
• National Renal Administrators Association (NRAA)
• National Vascular Access Improvement Initiative (Fistula First)
• Nephrology Nursing Certification Commission (NNCC)
• North American Transplant Coordinators Organization (NATCO)
• Occupational Safety and Health Administration (OSHA)
  • Bloodborne Pathogens and Needlestick Prevention
  • Workplace Violence
• OrganDonor.gov
• Organ Procurement and Transplantation Network (OPTN)
• Polycystic Kidney Disease Foundation
• Quackwatch
• Renal Physicians Association (RPA)
• Scientific Registry of Transplant Recipients (SRTR)
• Sepsis Alliance
• S.L.E. Lupus Foundation
• Spanish Society of Dialysis and Transplantation (Sociedad Española de Diálisis y Trasplante) (SEDYT)
• TransWeb (All about transplantation and donation) (opens new browser window)
• UK Renal Registry
• United Network for Organ Sharing (UNOS)
• U.S. Federal Government:  President,  Senate,  House of Representatives,  Thomas
  • U.S. Department of Health and Human Services
  • Senate Finance Committee, Subcommittee on Health
  • House of Representatives Ways and Means Committee, Subcommittee on Health
• US Renal Data System (USRDS)
• Vascular Access Society
  
  

Nephrology Resources

• Centers Watch
• Dialysis & Transplantation
• Dialysis Facility Compare from Medicare
• Hypertension, Dialysis and Clinical Nephrology (HDCN) ASN Education
• Kidney Epidemiology and Cost Center at the University of Michigan
• Medical Historical Library Internet Resources (SIR) from Cushing/Whitney Medical Library (Yale)
• Medicare and Kidney Disease Education from Medicare
• National Academies
• National Library of Medicine (NLM) (Home Page - MEDLINE Database/PubMed Search)
• NLM MEDLINE plus Health Information (Kidney Failure and Dialysis)
• Nephron Information Center
• Renal Fellow Network
• Renal Research Institute (RRI)
• RenalWEB
• RenalWEB Current Monthly Journals
  

Resources for Dialysis Patients

• Aging with Dignity
• Alliance for Home Dialysis
• Alliance for Paired Donation
• American Association of Kidney Patients (AAKP)
• American Kidney Fund (AKF)
• BenefitsCheckUpRx
• CaregiverStress
• Cleveland Clinic Foundation Renal Diet Cookbooks
• DaVita Diet Helper
• DaVita Patient Citizens (DPC)
• Dialysis Facility Compare (from the Medicare web site)
• Dialysisfinder™  Travel help for patients/social workers
• Dialysis Units in the USA™ (from Nephron Information Center)
• Disabled Living Foundation (DLF)
• European Kidney Patients’ Federation CEAPIR
• Financial Assistance for Living Donors
• Green Dialysis
• HealthWell Foundation
• Help Hope Live
• Home Dialysis Central
• Home Dialyzors United web site
• Jewish Kidney & Transplant Support Center
• Kidney Care Partners
• Kidney Community Emergency Response
• Kidney End-of-life Coalition
• Kidney Options™
• Kidney Patient's Guide (UK site)
• Kidney Patient News
• Kidney School™
• Kidney & Urology Foundation of America, Inc.
• Life Options Rehabilitation Program
• Living Kidney Donor Network
• Living Kidney Donor Search
• Living Kidney Donor Search Tools and Tips
• National Association of Professional Home Care
• National Donor Memorial
• National Family Caregivers Association (NFCA)
• National Kidney Federation (UK site)
• National Kidney Foundation (USA)
  • K/DOQI™ Educational Materials
• National Patient Safety Agency (UK site)
• National Patient Safety Foundation
• Nephron Information Center
• NIDDK Publications On-line - Easy-to-read publication: Eat Right to Feel Right on Hemodialysis
• Nocturnal Home Haemodialysis
• Patient Access Network Foundation - medication assistance
• Patient Education Institute
• PatientsLikeMe
• Quackwatch
• Renal Family Cookbook
• Healthy Life Info
• renalinfo.com
• Renal Nutrition Resouces (from NKF - CRN)
• Renal Support Network (Southern California)
• Restless Legs Syndrome Foundation (RLS)
• S.L.E. Lupus Foundation
• Small Comforts Foundation
• Supportive Care Coalition
• Transplant Living
  

Web Sites by Dialysis/Transplant Patients

• Barbara's Kidney Web Site
• Bryan's Kidney Page
• Claire's Web Site
• Dialysis & Kidney Disease Face Book discussion page
• Care-Partners for Home Dialysis Face Book discussion page
• Home Dialysis Central Face Book discussion page
• Home Dialyzors United Face Book discussion page
• I Hate Dialysis web site
• I Hate Dialysis Face Book discussion page
• Kidney Disease, Dialysis, and Transplantation Face Book discussion page
• Living Donors Online Message Board discussion page
• MedWish web site for donating medical supplies
• My Twenty-Eight Years on Dialysis
• Polycystic Kidney Disease Face Book discussion page
• Presumed Consent Foundation
• The Renal Gourmet
• Women's Renal Failure Support Face Book discussion page

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